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Working on Gabriel’s LifeOctober 29, 2007 on 3:22 pm | In hydrocephalus |Before I began working on the Gabriel’s Life project, I had never heard of hydrocephalus. The reason is simple. No one I knew had ever been diagnosed with it. Of course, that changed when I started working with Leilani Schweitzer, a friend and colleague who lost her son, Gabriel to the disease. What I also came to find out is there is still much to know, and there is no cure. Leilani’s story is heartbreaking, and I cannot even begin to understand the grief and loss she went through and will always hold in her heart. However, I can attest to what she has decided to do as a result of her loss. Leilani embarked upon the Gabriel’s Life project in hopes that we as a community can learn from what happened not only to Gabriel, but to others who have had to face hydrocephalus. The web represents the best possible means of disseminating and distributing information to a large audience. Gabriel’s Life makes use of that fact and some of the latest online publishing tools to share information, create a community, and give people a vehicle for interacting with those who are concerned with hydrocephalus. Of course the site, just like a community, is only as good as those that choose to participate. In order for Gabriel’s Life to truly succeed, it is up to you to contribute and encourage those you know to do the same. The hope is that you will find Gabriel’s Life both relevant and valuable and ever-evolving. A site that grows and builds and becomes better because of contributions from people like you. We don’t know if there will ever be a cure, but we do know that information is power, and sharing it gets us closer to finding one. No Comments yet »RSS feed for comments on this post. TrackBack URI Leave a comment |
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