Gabriel’s Life

Hydrocephalic Author Beats the Odds with a Great Book

Last night I finished Sherman Alexie’s book, “The Absolutely True Diary of a Part-Time Indian.” It was fantastic! I spent one of those nights where you wearily look at the clock glowing 2:00 am, consider the consequences of staying up too late, but then forge ahead because, well, you are almost done, almost done, almost done!

One thing is for sure, you don’t have to be an American Indian to appreciate this heartwarming, heartbreaking, and humorous tale of a poor 14-year old boy trying to survive an intense life inside and out of a reservation. You are right there with him, cheering for him the whole way.

While the book is categorized as fiction, there are undoubtedly many real life components that make up the story. Sherman Alexie was diagnosed with hydrocephalus; in fact, he was not expected to live. He also did grow up on a reservation, and he attended the very school he uses to stage many of his most pivotal, life-changing events.

My friend, Leilani Schweitzer is the one who turned me on to the book. I think I knew what her intentions were from the very beginning, but I honestly did not think about them until I was done. I finished the last page, closed the book, and laid there and revisited the story trying to go to sleep.

All of the sudden I thought, what if Alexie hadn’t survived hydrocephalus? He would have never written the book. I would have never had the chance to delve into his experience and perspectives. I would have never been touched by his emotion and courage. It was then that I really understood what Leilani had done.

Leilani showed me what a wonderful thing hydrocephalus can take away from us. I have never lost anyone to hydrocephalus. Only she has. Only you have. I can only imagine. But now I would never want anyone to take away the story that Alexie shared.

People impacted by hydrocephalus have the potential to accomplish wonderful things. They just need the chance to live, and live healthy, productive lives. The only way that is going to happen is through greater awareness and sharing of information, solid medical treatment, and pushing for a cure.

At the end of the book the author’s character, Arnold and his good friend Rowdy play basketball together in the fading light. It could be the last time they are ever together. They just play, and no one keeps score. There is no fighting and no competition, just two people at peace with one another enjoying the moment together. It is indicative of what I think anyone faced with hydrocephalus would want. A moment without struggle, and a time to enjoy life with someone you care about.

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